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01 May

Marmor and a group of UC San Diego colleagues conducted a 2016 study to explore the controversy of why so many women with non-genetic breast cancer were requesting contralateral prophylactic mastectomy, even though the operation did not improve their survival.“We expected to find that women in these online rooms would discuss surgical options, including risks and benefits,” said Marmor, an informatics fellow and surgery resident at UC San Diego School of Medicine.“Surprisingly, we found that 95 percent of posters had already undergone surgery.

One of the first rules of netiquette is to never type in all caps.Few who were posting in chat rooms had not already had an operation.” “The more that I delved into these online health communities, the more I found groups of people really trying to support each other. Users encouraged other users to talk to their doctors and were upfront in saying they could not offer medical guidance.” Jina Huh, Ph D, assistant professor of medicine, described four types of chat room users or personas in the .“We identified four broad categories of visitors to online health communities from an online survey of more than 180 online health community users,” said Huh.“These users included ‘caretakers, opportunists, scientists and adventurers’.”Huh explained that caretakers cite emotional support as a high value in visiting these communities.Each offer a different experience and we hope you give them all a try.Below we have screenshots and descriptions to help you make your selection.